Nous avons eu la chance d’être invités à participer au Webinaire de la Société Normande de Physiothérapie organisé autour des Syndromes d’Ehlers-Danlos, ayant eu lieu le 12 novembre 2020, à destination des kinésithérapeutes intéressés. Voici la vidéo de l’intervention de…
Headaches in hypermobility syndromes: A pain in the neck? Anuj Malhotra Anna Pace Tania Ruiz Maya Rachel Colman Bruce D. Gelb Lakshmi Mehta Amy R. Kontorovich Am J Med Genet Part A. 2020;1 – 7. https://doi.org/10.1002/ajmg.a.61873 Résumé Des maux de…
Surgical Management of Shoulder and Knee Instability in Patients with Ehlers-Danlos Syndrome: Joint Hypermobility Syndrome Andrew Homere, Ioanna K Bolia, Tristan Juhan, Alexander E Weber, George F Hatch. Clin Orthop Surg. 2020 Sep;12(3):279-285. L’article est disponible sur internet et accessible…
Small fiber neuropathy is a common feature of Ehlers-Danlos syndromes. Cazzato D, Castori M, Lombardi R, Caravello F, Bella ED, Petrucci A, Grammatico P, Dordoni C, Colombi M, Lauria G. Neurology. 2016 Jul 12;87(2):155-9. doi: 10.1212/WNL.0000000000002847. Epub 2016 Jun 15….
Silverstein H, Smith J, Kellermeyer B. Stapes hypermobility as a possible cause of hyperacusis. Am J Otolaryngol. 2019 Mar-Apr;40(2):247-252. doi: 10.1016/j.amjoto.2018.10.018. Epub 2018 Oct 31. PMID: 30502003. Résumé Objectif: L’hyperacousie est une réduction des tolérances normales pour les sons quotidiens….
Jensen A-M, Andersen JQ, Quisth L, Ramstrand N. Finger orthoses for management of joint hypermobility disorders: Relative effects on hand function and cognitive load. Prosthetics and Orthotics International. September 2020. doi:10.1177/0309364620956866 Résumé Contexte: L’hypermobilité articulaire fait référence aux articulations qui…
Hakimi A, Bergoin C, Mucci P. Immediate and 6-week after effects of a rehabilitation program for Ehlers-Danlos syndrome hypermobile type patients: A retrospective study. Am J Med Genet A. 2020 Aug 1. doi: 10.1002/ajmg.a.61772. Epub ahead of print. PMID: 32738018….
Sundelin HE, Stephansson O, Johansson K, Ludvigsson JF. Pregnancy outcome in joint hypermobility syndrome and Ehlers-Danlos syndrome. Acta Obstet Gynecol Scand. 2017 Jan;96(1):114-119. doi: 10.1111/aogs.13043. Epub 2016 Nov 22. PMID: 27743500. Résumé Introduction: Un risque accru d’accouchement prématuré chez les…
Feldman, E.C.H.; Hivick, D.P.; Slepian, P.M.; Tran, S.T.; Chopra, P.; Greenley, R.N. Pain Symptomatology and Management in Pediatric Ehlers–Danlos Syndrome: A Review. Children 2020, 7, 146. Résumé Les syndromes d’Ehlers-Danlos (SED) sont un groupe de troubles du tissu conjonctif qui…
Utilization of the 2017 diagnostic criteria for hEDS by the Toronto GoodHope Ehlers – Danlos syndrome clinic : A retrospective review McGillis L, Mittal N, Santa Mina D, et al. Am J Med Genet A. 2020;182(3):484-492. doi:10.1002/ajmg.a.61459 Résumé Les nouveaux…
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