Fibromyalgie: un syndrome d’Ehlers-Danlos de type hypermobile qui s’ignore? / [Fibromyalgia: an unrecognized Ehlers-Danlos syndrome hypermobile type?]. Hermanns-Lê, T; Piérard, G E; Angenot, Ph. Rev Med Liege ; 68(1): 22-4, 2013 Jan. Résumé : Certains patients fibromyalgiques présentent des signes…
Palmer, S., Denner, E., Riglar, M. et al. Quantitative measures of tissue mechanics to detect hypermobile Ehlers-Danlos syndrome and hypermobility syndrome disorders: a systematic review. Clin Rheumatol 39, 715–725 (2020). https://doi.org/10.1007/s10067-020-04939-2 L’article est en open acess et donc accessible aux…
Benoît Bonneté, masseur-kinésithérapeute mezieriste, membre du GERSED et expert kinésithérapeute de SED’in FRANCE, est intervenu lors des Rencontres du GERSED pour présenter aux patients présents sa vision de la prise en charge des SED/HSD en masso-kinésithérapie. Ce qu’il faut retenir…
Spanhove V, De Wandele I, Hougs KB, Malfait F, Vanderstukken F, Cools A, THE EFFECT OF FIVE ISOMETRIC EXERCISES ON GLENOHUMERAL TRANSLATIONS IN HEALTHY SUBJECTS AND PATIENTS WITH THE HYPERMOBILITY TYPE OF THE EHLERS-DANLOS SYNDROME (HEDS) OR HYPERMOBILITY SPECTRUM DISORDER…
Mechanisms underlying reflux symptoms and dysphagia in patients with joint hypermobility syndrome, with and without postural tachycardia syndrome. Fikree A, Aziz Q, Sifrim D. Neurogastroenterol Motil. 2017 juin; 29 (6). doi: 10.1111 / nmo.13029 Lien Pubmed Mécanismes sous-jacents aux symptômes…
Cet article est intégralement disponible en ligne et donc accessible à la traduction par les outils du net : ONLINELIBRARY Survey of Ehlers-Danlos Patients’ ophthalmic surgery experiences. Mol Genet Genomic Med. 2020 Jan 27:e1155. doi: 10.1002/mgg3.1155. Résumé CONTEXTE Le syndrome…
Résumé Le syndrome d’Ehlers-Danlos (SED) vasculaire est une maladie génétique rare de transmission autosomique dominante. Il se distingue des autres formes de SED par un morphotype acrogérique inconstant et par la survenue de complications vasculaires, digestives et obstétricales. Le diagnostic…
Diagnostic, classification, examens
Accuracy of Clinical Diagnostic Criteria for Patients with Vascular Ehlers-Danlos Syndrome in a Tertiary Referral Centre. Henneton P, Albuisson J, Adham S, Legrand A, Mazzella JM, Jeunemaitre X, Frank M. Circ Genom Precis Med. 20 février 2019 doi: 10.1161 /…
Résumé Introduction L’objectif de cette étude était de décrire et d’analyser les principales manifestations ophtalmologiques retrouvées dans une cohorte de 21 patients suivis pour maladie d’Ehlers–Danlos dans notre service. Matériels et méthodes Cette cohorte analysait 21 patients consécutifs (17 femmes…
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