Le 15 juin 2019, SED’in FRANCE sera présent au 3ème forum « Différence et Handicap » sur la commune de Lesparre-Médoc (33), Salle Saint Trelody, Rue Jean Fourment, organisé par l’association Médoc Enfance Handicap.
Venez nombreuses et nombreux rencontrer Aureline qui s’est proposée pour nous représenter de 9h30 à 17h30 dans la joie et la bonne humeur.
15 NOVEMBRE 2025
Publication de The Ehlers-Danlos Society du 29/10/2025 Pour plus d’information sur...
31 OCTOBRE 2025
L’association SED’in FRANCE a été créée en avril 2018, il y a donc 7...
11 MAI 2025
L’enquête sur l’expérience communautaire SED et HSD 2025 est désormais...
8 MAI 2025
La cellule opérationnelle de la Banque Nationale de Données Maladies Rares (BNDMR)...
4 MAI 2025
Le mois de mai est le mois de sensibilisation aux Syndromes d’Ehlers-Danlos et aux...
3 MARS 2025
706€ reversés à SED’in FRANCE par la classe de maroquinerie du lycée Blaise Pascal...
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