Cher(e)s membres,
L’Assemblée Générale de SED’in FRANCE a eu lieu en visio-conférence le samedi 4 mai 2024 à 14h30. Vous trouverez ci-dessous le rapport moral et le rapport financier, ainsi que le compte-rendu de l’assemblée générale.
Voici le rapport moral.
Rapport moral 2023_AG2024
Voici le rapport financier.
Rapport financier 2023_VDef
Voici le compte-rendu de l’assemblée générale.
CompteRendu_AG2024
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Bonjour.
Je viens d’être diagnostiquée.
Combien coûte l’adhésion ?
A quoi donne t’elle droit ?
J’ai besoin de tout apprendre.
Ke professeur qui m’a informé de la maladie ne m’a rien dit sur elle ni sur moi
Bonjour. L’adhésion annuelle est de 20 € : Adhésion annuelle. Elle vous permet de soutenir notre travail, d’accéder aux documents réservés aux membres et d’accéder aux groupes facebook réservés aux membres.
Ayant une personne de jeune âge dans ma famille atteinte de ce syndrome. Je souhaiterai faire mon grand orale sir ce sujet. Est ce possible d’avoir un rendez vous avec un spécialiste et même adhérent afin de parler de ce syndrome.
Bonjour. Pouvez-vous nous faire un mail à contact@sedinfrance.org s’il vous plaît ? Nous essaierons de trouver un bénévole disponible pour vous aider.